Sunday, June 23, 2013


2013\06\23 - OK day - took Myprodols and Yolande and I went riding. Did about 18km to a restaurant to See John, then 8km home (more Myprodol). Felt ok
2013\06\22 - bad day - basically did nothing, sat still and read my book all day.

Thursday, June 20, 2013

2013\06\21 - very bad day - decided to stay at home - got a headache even with myprodol it is not going away. I seem to be ok when I am lying down.

2013\06\20 - bad day - headaches and could not concentrate. Ended up leaving work early instead of going for my 4km run as planned.
2013\06\19 - bad day - struggled all day, got cross in the evening.

Tuesday, June 18, 2013

2013\06\18 - Poor Day - 4th Treatment - Haemoglobin at 16. Struggled to do anything today - most of the time felt either light header or had a head ache. In the evening had some myprodol and was able to stay up until about 9pm.

Monday, June 17, 2013


2013\06\17 - Poor day - did nothing and had to take head ache pills - in the early evening felt a bit down and more headaches. Spent the day writing computer game.
Missed Treatment due to Public Holiday, going early tomorrow morning.

2013\06\16 - Good Day - Fathers Day. Worked on roof and Got Very tired. In bed at about 7pm. (Gawain helped on the roof for me)

2013\06\15 - Good Day - spent time fixing roof, went to gym and did 25mins spinning - very tired afterwards
2013\06\14 - Good Day - Church Movie night in the evening - overall a Good day

2013\06\12 - Good Day - Ran 4km in the afternoon - 7mins per KM and I was VERY tired.
2013\06\11 - OK Day

Monday, June 10, 2013


2013\06\10 - Good Day - 3rd treatment - Worked well today, could concentrate fully and was productive - only worked for about 2 hours but I felt I had accomplished as much as I normally do in a day.

Went for 3rd Phlebotomy today - haemoglobin 15.6.
2013\06\09  - Good day - after church we rode to gym, did some spinning and rode home again.

Sunday, June 9, 2013

2013\06\08 - good day - did work on roof, went cycling with Yolande - was ready for bed at about 19:00 - asleep by 20:30.

Very few headaches this week. Mostly suffering form being tired rather than headaches and concentration problems.

Friday, June 7, 2013


2013\06\07 - Good day - went cycling and felt good (about 10km with HP). Afternoon was ok, evening got very tired.
2013\06\06 - OK Day - sounds seem to be very irritating suddenly

Wednesday, June 5, 2013

2013\06\05 - Poor day - struggled to get involved in anything.

Tuesday, June 4, 2013

2013\06\04 - Poor Day today, had some trouble concentrating and definitely a bit of tunnel vision but was able to work ok. I am hoping I can remember everything that was discussed.

Monday, June 3, 2013

2013\06\03 - Poor day - 2nd treatment - felt bad with headaches but did not affect what I could do. Went for my 2nd venesection today. Haemoglobin was 15.4. No prblems. Also drew blood for ferritin levels and for a second DNA test. Nearly passed out while doing the 3 small vials.

Ferritin level was 491

Sunday, June 2, 2013

2013\06\02  - Poor Day - did everything I wanted to but never felt great - lots of headaches
2013\06\01 - OK day

Saturday, June 1, 2013

2013\05\31 - Good Day

Went to see a specialist today (Haemotologist). At first he was sceptical but once he saw all the blood tests that were done previously he seemed to accept it. He suggested I get a second DNA test as confirmation - this is after a lifelong commitment - do you really want to do it on just one test result?

I can now do blood draws every week
I need to do a Ferritin every 2nd week

It is now up to me to manage it, as I see fit :D