2013\07\15 Haemoglobin 14.7, blood Pressure 140/90

2013\07\08 Hemoglobin 15 Blood Pressure 110/70

2013\06\23 - OK day - took Myprodols and Yolande and I went riding. Did about 18km to a restaurant to See John, then 8km home (more Myprodol). Felt ok

2013\06\22 - bad day - basically did nothing, sat still and read my book all day.

2013\06\21 - very bad day - decided to stay at home - got a headache even with myprodol it is not going away. I seem to be ok when I am lying down.

2013\06\20 - bad day - headaches and could not concentrate. Ended up leaving work early instead of going for my 4km run as planned.

2013\06\19 - bad day - struggled all day, got cross in the evening.

2013\06\18 - Poor Day - 4th Treatment - Haemoglobin at 16. Struggled to do anything today - most of the time felt either light header or had a head ache. In the evening had some myprodol and was able to stay up until about 9pm.

2013\06\17 - Poor day - did nothing and had to take head ache pills - in the early evening felt a bit down and more headaches. Spent the day writing computer game.
Missed Treatment due to Public Holiday, going early tomorrow morning.

2013\06\16 - Good Day - Fathers Day. Worked on roof and Got Very tired. In bed at about 7pm. (Gawain helped on the roof for me)

2013\06\15 - Good Day - spent time fixing roof, went to gym and did 25mins spinning - very tired afterwards

2013\06\14 - Good Day - Church Movie night in the evening - overall a Good day

2013\06\12 - Good Day - Ran 4km in the afternoon - 7mins per KM and I was VERY tired.

2013\06\11 - OK Day

2013\06\10 - Good Day - 3rd treatment - Worked well today, could concentrate fully and was productive - only worked for about 2 hours but I felt I had accomplished as much as I normally do in a day.

Went for 3rd Phlebotomy today - haemoglobin 15.6.

2013\06\09  - Good day - after church we rode to gym, did some spinning and rode home again.

2013\06\08 - good day - did work on roof, went cycling with Yolande - was ready for bed at about 19:00 - asleep by 20:30.

Very few headaches this week. Mostly suffering form being tired rather than headaches and concentration problems.

2013\06\07 - Good day - went cycling and felt good (about 10km with HP). Afternoon was ok, evening got very tired.

2013\06\06 - OK Day - sounds seem to be very irritating suddenly

2013\06\05 - Poor day - struggled to get involved in anything.

2013\06\04 - Poor Day today, had some trouble concentrating and definitely a bit of tunnel vision but was able to work ok. I am hoping I can remember everything that was discussed.

2013\06\03 - Poor day - 2nd treatment - felt bad with headaches but did not affect what I could do. Went for my 2nd venesection today. Haemoglobin was 15.4. No prblems. Also drew blood for ferritin levels and for a second DNA test. Nearly passed out while doing the 3 small vials.

Ferritin level was 491

2013\06\02  - Poor Day - did everything I wanted to but never felt great - lots of headaches

2013\06\01 - OK day

2013\05\31 - Good Day

Went to see a specialist today (Haemotologist). At first he was sceptical but once he saw all the blood tests that were done previously he seemed to accept it. He suggested I get a second DNA test as confirmation - this is after a lifelong commitment - do you really want to do it on just one test result?

I can now do blood draws every week
I need to do a Ferritin every 2nd week

It is now up to me to manage it, as I see fit :D

2013\05\30 - Good day - was reasonably busy all the time but felt ok - seemed to fade a bit after 13:00 - went for a walk of 4km in the afternoon - felt ok  during and after the exercise.
(Weighed myself - 86kg, 23.7% fat)

2013\05\29 - Goodish day - lots of meetings but felt ok - was tired in the evening.

2013\05\28 - Poor day - Not a very good day today. By about 13:30 I was not able to concentrate properly anymore. I even asked Steve (my boss) to take some work off of me.

I skipped Adventure Racing club evening for the first time I can remember - I just did not feel up to going all the way there.

Today I  posted my face book status as "I seem to miss something the most, when I don't think I will be able to have it again.". The idea of possibly not getting back to being able to do Adventure Racing is rather depressing.

2013\05\27 - Poor day - First treatment session - Hb 16.5 - Been having headaches again.

On the 16th of May 2013 I was diagnosed with Haemochromatosis.

To help me understand my condition and the way I react to it, and the way I react to the treatment I have decided to create this blog as a diary. Day by day I will update how I feel, what I have done and the results thereof.

My goal will be to get back to doing the sport of my choice, without having to struggle through each bit of the race. (Adventure Racing)

My last Ferritin tests are dated 2013/04/25, my S-Ferritin level was 834 ug/mL and my S-% Saturation was 56%